Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Sunday, August 23, 2026

GREAT AND UNFORTUNATE THINGS, the last words we will hear from the late JASON ARDAY



GREAT AND UNFORTUNATE THINGS
JASON ARDAY
with Eve Claxton
37 Ink/Simon & Schuster (non-affiliate Bookshop.org link)
$14.99 ebook, available now

Rating: 4* of five

The Publisher Says: With the power of Educated and the emotional sweep of When Breath Becomes Air, Great and Unfortunate Things is the inspiring, underdog story of how an autistic, non-verbal boy who society had all but given up on found his voice, literally and figuratively, became one of the youngest professors in the University of Cambridge’s history and put himself in a position to give back.

Jason Arday was born the second youngest of three boys and grew up in a colorful and lively section of South London. At three years old, he was diagnosed with autism and development delays. Experts told his parents that he would never be able to speak, write, or live independently. An institution would best serve his needs, it was suggested.

His parents would have none of it. Instead, thinking outside the box and drawing on her faith, his extraordinary mother Giff embraced his neurodivergence and fiercely dedicated herself to helping her son realize a potential few others believed was possible. Giff drew on proverbs from her West African culture, popular music by the likes of Enya, and comedic television shows and movies to help Jason make sense of the world.

In Great and Unfortunate Things, we see how Arday went from being nonverbal until he was eleven and illiterate until eighteen to becoming a professor at Cambridge. Without romanticizing the struggle, it’s a story of a son’s determination against insurmountable odds and how his family and a band of ordinary people with extraordinary compassion joined forces to encourage Jason to believe in himself and maximize his capabilities.

This is the story we need right now, and Arday, who believes in paying it forward, is the kind of figure the world can use more of now more than ever.

I RECEIVED A DRC FROM THE PUBLISHER VIA NETGALLEY. THANK YOU.

My Review
: I avoided talking about this read after the tragic ending of the online attacks against Author Arday. It needs saying that this horrifying event should ever have happened, that it truly ought to reinforce in we-the-readers' mind that literally every accusation is a confession.

On to the read.

Someone needs to be enormously lucky to find people who offer this much support, this level of kind and sustained attention. Of course it didn't hurt that Author Arday was an attractive young man, and clearly quite charismatic. It was a case of luck coinciding with fertile ground for the luck to take effective root in. A tutor who committed his time and effort to help his fellow student pursue a huge goal, college graduation, after only very recently learning to read and write because a co-worker (later girlfriend, then wife) taught him to do so using readily available phonics courses? Support pouring in for a publicly documented goal of running 30 marathons in 35 days...a goal he achieved as the public record shows? It was an extraordiary life lived in a very public and vocal way. t is aways sad when allegations are assumed to be enough proof to, from the outside, judge a person guilty of misconduct. There is nothing like overachieving to attract scrutiny, but it's not always as dire as sensational headlines make it sound.

Its tragic ending ought to be the impetus for this inspiring, if somewhat gee-whiz in tone, story to climb bestseller lists. It is a sin and a shame the reason it is now likely to be the bestseller it's always, on its merits, deserved to be. A tarnished reputation is not a reason to think less of the real and difficult achievements of an imperfect, ambitious man.

Wednesday, July 20, 2022

TOMORROW, AND TOMORROW, AND TOMORROW...taking Shakespeare literally is good strategy


TOMORROW, AND TOMORROW, AND TOMORROW: A Novel
GABRIELLE ZEVIN

Alfred A. Knopf
$28.00 hardcover, available now

TRADE PAPER EDITION ON 25 JUNE 2024 It will cost $19.00 and pre-orders are accepted now.

Rating: 4* of five

The Publisher Says: In this exhilarating novel by the best-selling author of The Storied Life of A. J. Fikry two friends—often in love, but never lovers—come together as creative partners in the world of video game design, where success brings them fame, joy, tragedy, duplicity, and, ultimately, a kind of immortality.

On a bitter-cold day, in the December of his junior year at Harvard, Sam Masur exits a subway car and sees, amid the hordes of people waiting on the platform, Sadie Green. He calls her name. For a moment, she pretends she hasn't heard him, but then, she turns, and a game begins: a legendary collaboration that will launch them to stardom. These friends, intimates since childhood, borrow money, beg favors, and, before even graduating college, they have created their first blockbuster, Ichigo. Overnight, the world is theirs. Not even twenty-five years old, Sam and Sadie are brilliant, successful, and rich, but these qualities won't protect them from their own creative ambitions or the betrayals of their hearts.

Spanning thirty years, from Cambridge, Massachusetts, to Venice Beach, California, and lands in between and far beyond, Gabrielle Zevin's Tomorrow, and Tomorrow, and Tomorrow is a dazzling and intricately imagined novel that examines the multifarious nature of identity, disability, failure, the redemptive possibilities in play, and above all, our need to connect: to be loved and to love. Yes, it is a love story, but it is not one you have read before.

I RECEIVED A DRC FROM THE PUBLISHER VIA NETGALLEY. THANK YOU.

My Review
: When you're old, like me, you don't expect to follow middle-aged peoples' passions because you raised them so you know there's just stuff not shared between generations. One of those things is gaming. I've watched people get really passionate about the games they're playing and, frankly, wanted to yawn in their face. I do not see the appeal. But, knowing this was going to be the spine of the story, I was ready for that and factored my indifference out of the story's appeal.
Sadie had often reflected that sex and video games had a great deal in common. There were certain objectives that needed to be met. There were certain rules that shouldn't be broken. There was a correct combination of movements—button mashes, joystick pivots, keystrokes, commands—that made the whole thing work or not work. There was a pleasure to knowing you had played the game correctly and a release that came when you reached the next level. To be good at sex was to be good at the game of sex.

What we're left with is the childhood friend, I think most of us have had one, whose idea of a good time marches well with our own and whose ability to connect with our quiet places makes them invaluable and necessary companions. This is not to say they're romantic-partner material, and in some odd way I think that romantic facet, if present, actually works against this sort of long-term companionship. The relationship that Sam and Sadie take with them through their lives is that companionably silent, creatively clicking connection. It's a wonderful thing to find and, mirabile dictu, Author Zevin makes the force of it real, present, and never overplays her hand with it. A tremendously admirable and no doubt difficult achievement.
Why was it so hard for him to say he loved her even when she said it to him? He knew he loved her. People who felt far less for each other said "love" all the time, and it didn't mean a thing. And maybe that was the point. He more than loved Sadie Green. There needed to be another word for it.

–and–

To allow yourself to play with another person is no small risk. It means allowing yourself to be open, to be exposed, to be hurt. It is the human equivalent of the dog rolling on its back—I know you won't hurt me, even though you can. It is the dog putting its mouth around your hand and never biting down. To play requires trust and love.

The hardest thing to admit to yourself is that you're the Bad Guy in someone else's fairy tale of life and love. Someone out there thinks of you with acute hurt and badly wounded feelings. Sam and Sadie are that to each other, as well as companionable besties. It's complicated, and it wouldn't do to spend time spoilering it, but suffice to say that the ability to betray, then to forgive yourself and seek forgiveness from the betrayed, is another very difficult thing to present in any believable way in fiction. Author Zevin does that, too.
"We work through our pain. That's what we do. We put the pain into the work, and the work becomes better. But you have to participate. You have to talk to me. You can't ignore me and our company and everything that came before."

It's a story about the depths of devotion to an idea, an ideal, and a cause in service of one's burning passion to make and be more than one is. It's a story about Love being, in the end, enough to make even failure less important. It's a story about Sam and Sadie making a life with each other: even though not spouses, they're necessary in each others' world because...well, because.
“I thought you were worried I was going to die," Sam said.

"No. You'll never die. And if you ever died, I'd just start the game again," Sadie said.

"Sam's dead. Put another quarter in the machine."

"Go back to the save point. Keep playing, and we'll win eventually.”

There it is, in that brief passage. That is what some connections offer, and what some of us luck into once or twice in a lifetime. It's precious beyond price and it's the heart of this loving story of the messy, cruel, angry thing we call life.

Why, then, have I given the read a mere four stars? Because I am, as noted above, old. It is not a story written for me, and so I am not as invested in it as I would be if I were 42 not 62. I expect that others will love the delicate and intricate love among all three main protagonists without the sense I had of being spoken around at the dinner table. It's a fate, like bed-wetting, that comes around again after being left behind in childhood. Hence the lack of a fifth, or fraction of a fifth, star. Still a story I'd encourage you to read. (With an agèd person caveat.)